My son has had a series of tics since he was little from squeeky sounds, to a Tiger Woods arm pump, to an extra hop in his step. There was also a throat clearing noise and excessive eye blinking. He generally would move from one tic to the next one in smooth succession.
When he had a severe concussion this past year, his neurologist said that he had Tourette’s Syndrome. His psychologist — very helpful for concussion because it can cause depression and anxiety — said that my son would have to have three tics simultaneously for it to be Tourette’s so he was deemed with just having a tic.
We actually think his tics are cute and it never worried us like his concussion does. We also figured he would outgrow it, which may very well be the case according to this therapist.
This is what I learned about tics, Tourette Syndrome, and OCD:
Tics, Tourette Syndrome, and OCD
Tics are rapid, repetitive movements or vocal utterances. They may be motor (like excessive eye blinking) or vocal (such as a habitual cough or chronic repetitive throat clearing noises), chronic (continuing throughout childhood), or transient (lasting less than 1–2 years). In children who eventually develop tic disorders and ADHD, the ADHD usually develops 2 to 3 years before the tics.
Tourette syndrome, which is quite rare, is a more severe form of tic disorder involving motor and vocal tics that occur many times per day. The average age at which it appears is 7 years. While children with Tourette syndrome may develop ADHD, the 2 disorders are separate and independent conditions. Attention-deficit/hyperactivity disorder is not a variant of Tourette syndrome, and Tourette syndrome is not just a variety of ADHD. Research has shown that chronic tic disorders, Tourette syndrome, and OCD may stem from some common factors, and a child with any of these conditions is quite likely to also have ADHD.
Obsessive-compulsive disorder involves such symptoms as obsessive thoughts (such as a highly exaggerated fear of germs) and compulsive behaviors (for example, excessive hand-washing in an attempt to reduce the fear of germs) that the child is unable to control or limit. In this sense, OCD is similar to tic disorders and Tourette syndrome, and creates additional functioning problems for children with ADHD. From HealthyKids.org
One out of a hundred children suffer from OCD (Obsessive Compulsive Disorder). Research indicates that it is due to a chemical imbalance in the brain. From Mr. Worry
Obsessive-Compulsive Disorder (OCD) is a common, chronic and long-lasting disorder in which a person has uncontrollable, reoccurring thoughts (obsessions) and behaviors (compulsions) that he or she feels the urge to repeat over and over. from NIMH
I found that I was misinformed about OCD. Author Wesley King also helped to set me straight:
“Obsessive Compulsion Disorder (OCD) is one of the most common but least understood mental illnesses in the world today. ‘I am so OCD’ has become a popular saying to describe someone who likes things clean and organized. But OCD is not liking things clean or organizing your socks. It’s a constant battle with your mind that can afflict every minute of every day.” OCDANIEL author note by Wesley King
I hope these books with characters who suffer from OCD help us all to understand this mental health disease. I am going to keep this list updated as I find more books, and will also link back to book reviews from other bloggers. Thanks for your help in building this list!
OCD Characters in Children’s and Young Adult books
Mr. Worry: A Story about OCD by
This is a great picture book for anyone who wants to understand what it is like to be a child with OCD. It explains why they can’t help checking the same things over and over again. In this story, Dr. Fraser explains how his brain handles doubts and fears. She teaches him how to “hang up”– the same as if you receive a wrong number phone call — on those doubts and fears using a combination of medicine and cognitive behavior therapy (CBT). This is a comforting story to understand the battles that children with OCD face in their heads, and the strategies to overcome them. [picture book, ages 4 and up]
Cookie Cutters & Sled Runners by Natalie Rompella
The character, Ana Morgan, in my book Cookie Cutters & Sled Runners, has obsessive-compulsive disorder. She obsesses about germs, and she washes compulsively. At the start of the book, we learn that Ana has OCD. She sees a therapist and seems to be working through her obsessions and compulsions. However, her life faces many changes, and her OCD flares up. [chapter book, ages 8 and up]
The Someday Birds by Sally J. Pla
Charlie has OCD and possibly also has Aspergers Syndrome. Accommodating his needs leads his crew on a cross-country trip in search of birds in a circuitous path that finalizes at a hospital in Virginia caring for their brain-damaged father. While Charlie’s siblings are on this trip — three siblings with their own strong personalities — it’s their caregiver, the mysterious Ludmila whose own backstory they discover throughout the course of their journey, that ties her, indirectly, to their father. And it’s during this adventure that includes meeting an assortment of people that pushes Charlie out of his usual routine and into a quest for both birds and a chance to meet a mysterious ornithologist that inspires him. Weaving these backstories together to such a satisfying ending is what makes this book Newbery caliber for me. It reminds me of Walk Two Moons and Moon Over Manifest, yet Pla manages to tie even more backstories together which is quite a feat. All the more remarkable that this is her debut book! [chapter book, ages 8 and up]
OCDaniel by Wesley King
Ms. Yingling Reads has a great review here which is how I discovered this book.
This is an almost autobiographical account of the author’s 8th grade when he hid his OCD from everyone. He used ritualized compulsions to try to control anxiety and panic attacks and had no idea what the cause was until he was 16. OCDANIEL deals with fitting in, a girl crush, and discovering the hero within himself. It’s an uplifting story of unlikely friendships. [chapter book, ages 9 and up]
Kat Greene Comes Clean by Melissa Roske
When I set out to write my first middle-grade novel, Kat Greene Comes Clean, I knew Kat would be a fun-loving, cake-eating, Harriet the Spy-reading New Yorker whose mom has OCD. (I’m a fun-loving, cake-eating, Harriet the Spy–reading New Yorker whose dad has OCD.) I also knew she’d go to a fictionalized version of the ultra-progressive elementary school I attended as a child. Why? Because my alma mater, the City and Country School, in New York’s Greenwich Village, helped shape my identity as a writer—and as a person.
Ms YingLing has a review here. In this book, the girl’s mother has OCD:
Kat lives with her divorced mother in Greenwich. She goes to a small, progressive school, and her class is working on a production of Harriet the Spy, and working on a project to go along with that. Kat is paired with Sam, and the two have their ups and downs of getting along. Her friend Halle is a bit obsessed with Michael, a boy in their class whom she thinks like her. Normal, everyday stuff– except for the fact that Kat’s mom is obsessed with cleaning, to the point where her hands are badly chapped and she brings antibacterial wipes to the grocery to use on canned goods. [chapter book, ages 9 and up]
The Miscalculations of Lightening Girl by Stacy McAnulty
Books My Kids Read has an excellent review here:
Susan McAnulty has managed to capture a number of feelings that kids go through with middle school embodied in the main characters of Lightning Girl. The fact that Lucy is a math genius just happens to be the unusual personality trait that she has, that she feels marks her as different and that she doesn’t want to be known. When her grandmother forces her to go to middle school for one year, make one friend, join one activity, and read one non-math book it seems like an overwhelming obstacle that she will not be able to accomplish.
Writing about feeling left out is something that deserves a bit more attention. McAnulty used hyperbole by making Lucy a savant as well as severely OCD, but the reality is that we have all felt left out or strange at some point in our lives. It is especially challenging in middle school when cliques are being formed and identities are being shaped. Having a character like Maddie who also uses peoples’ weaknesses as a part of her power, is the normal “mean girl” character we have all come to expect in a novel like this.” [chapter book, ages 8 and up]
The Goldfish Boy by Lisa Thompson
This Kid Reviews Books has an excellent review here:
“I think this was an excellent debut novel. Matthew is thoroughly developed so that we as a reader feel that we sort of understand why he has germaphobic, agoraphobic, obsessive-compulsive tendencies, even if we don’t get a clear picture until almost the end. It’s quite an insight into the mind of someone who middle-grade readers may not “meet” so often. One thing I thought was interesting was that Matthew understood he wasn’t thinking normally but was unable to stop his thoughts and actions. The book focuses a lot on the inner turmoil of Matthew, and how he must face his fears to be able to help find the missing toddler. The actual plot and the mystery are solid, with lots of clues that keep you guessing as to who did the crime. Thompson has an incredible way of writing that keeps you drawn into the story. I cannot wait to read what she comes up with next!” [chapter book, ages 8 and up]
School of Fear series by Gitty Daneshvari
While some do not consider phobias to be true OC Spectrum Disorders, they do have obsessive-compulsive features that are quite similar to OCD. … Also, phobias and OCD both involve intense, irrational fears and repeated avoidance of anxiety-provoking objects and/or situations. from OCD Center of Los Angeles
This is the kind of school you’d send your kids if they had debilitating phobias to conquer. Even if my kids weren’t terrified of something, I’d have them read this very funny series. [chapter book, ages 10 and up]
Every Last Word by Tamara Ireland Stone
Every Last Word has a very different protagonist than OCDANIEL. Sam has been diagnosed with OCD since she was 11 and has an amazing psychiatrist. Now a Junior in high school, she looks every bit the part of a popular girl. Except she’s miserable with her old set of friends but doesn’t know how to get out. When she meets Caroline Madsen, things change with an introduction to a secret poetry club at school. Poetry frees Sam from the numbers that control her life via her OCD, and offers a do-over to the cruelty she inflicted as a middle school bully. But not everything is at it seems. [young adult, ages 12 and up]
Thank you to my Instagram follower @the_neverending_stack for her suggestion. She says, “I remember The Unlikely Hero of Room 13B by Teresa Toten being a really powerful read about a character with OCD.
Filled with moments of deep emotion and unexpected humor, this understated and wise novel explores the complexities of living with OCD and offers the prospect of hope, happiness, and healing. Perfect for readers who love Eleanor & Park and All the Bright Places. [young adult, ages 14 and up]
Thank you to my Instagram follower @2cowsread for her suggestion:
The Goldfish Boy by debut author Lisa Thompson has a main character who suffers from OCD. The book is British and set in England so readers get to see how their health system deals with such issues (honestly when the primary doctor makes the referral we could only hope that was not based on a true story. The book is middle grade.
Lisa Thompson’s debut novel is a page-turning mystery with an emotionally-driven, complex character study at its core — like Rear Window meets The Curious Incident of the Dog in the Night-Time.
Matthew Corbin suffers from a severe obsessive-compulsive disorder. He hasn’t been to school in weeks. His hands are cracked and bleeding from cleaning. He refuses to leave his bedroom. To pass the time, he observes his neighbors from his bedroom window, making mundane notes about their habits as they bustle about the cul-de-sac.
When a toddler staying next door goes missing, it becomes apparent that Matthew was the last person to see him alive. Suddenly, Matthew finds himself at the center of a high-stakes mystery, and every one of his neighbors is a suspect. Matthew is the key to figuring out what happened and potentially saving a child’s life… but is he able to do so if it means exposing his own secrets, and stepping out from the safety of his home? [chapter book, ages 8 and up]
Total Constant Order by Crissa-Jean Chappell
Thank you to @BarbaraEtlin on Twitter for this recommendation.
Fin can’t stop counting. She’s always heard a voice inside her head, ordering her to listen, but ever since she’s moved to the Sunshine State and her parents split up, numbers thump like a metronome, rhythmically keeping things in control. When a new doctor introduces terms such as “clinical depression” and “OCD” and offers a prescription for medication, the chemical effects make Fin feel even more messed up. Until she meets Thayer, a doodling, rule-bending skater who buzzes to his own beat—and who might just understand Fin’s hunger to belong, and her struggle for total constant order.
Crissa-Jean Chappell’s candid and vividly told debut novel shares the story of a young teen’s experience with obsessive-compulsive disorder and her remarkable resolve to find her own inner strength. [young adult, ages 13 and up]
Thanks to KidLitCon 2017 who created a book list on OCD, I can add these YA books:
Highly Illogical Behavior by John Corey Whaley
Sixteen-year-old Solomon has agoraphobia. He hasn’t left his house in 3 years. Ambitious Lisa is desperate to get into a top-tier psychology program. And so when Lisa learns about Solomon, she decides to befriend him, cure him, and then write about it for her college application. To earn Solomon’s trust, she introduces him to her boyfriend Clark and starts to reveal her own secrets. But what started as an experiment leads to a real friendship, with all three growing close. But when the truth comes out, what erupts could destroy them all. Funny and heartwarming, Highly Illogical Behavior is a fascinating exploration of what makes us tick, and how the connections between us may be the most important things of all. [young adult, for ages 13 and up]
Don’t Touch by Rachel M. Wilson
Step on a crack, break your mother’s back,
Touch another person’s skin, and Dad’s gone for good . . .
Caddie has a history of magical thinking—of playing games in her head to cope with her surroundings—but it’s never been this bad before.
When her parents split up, Don’t touch becomes Caddie’s mantra. Maybe if she keeps from touching another person’s skin, Dad will come home. She knows it doesn’t make sense, but her games have never been logical. Soon, despite Alabama’s humidity, she’s covering every inch of her skin and wearing evening gloves to school.
And that’s where things get tricky. Even though Caddie’s the new girl, it’s hard to pass off her compulsions as artistic quirks. Friends notice things. Her drama class is all about interacting with her scene partners, especially Peter, who’s auditioning for the role of Hamlet. Caddie desperately wants to play Ophelia, but if she does, she’ll have to touch Peter . . . and kiss him. Part of Caddie would love nothing more than to kiss Peter—but the other part isn’t sure she’s brave enough to let herself fall.
From rising star Rachel M. Wilson comes a powerful, moving debut novel of the friendship and love that are there for us, if only we’ll let them in. [young adult, ages 14 and up]
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